Saturday, March 13, 2010
Kiefer's pre-op adventure
We then drove to a friend's house in nearby Somerville, where we spent the night before heading back for 7:00 am Friday morning. Kiefer wasn't used to sleeping somewhere new and we had a very difficult time getting him to fall asleep. He woke up at 5:00 am and said, "I want to play!" Because Kiefer didn't want to cooperate Thursday with the ultrasound (he refused to lay down for it and cried when we asked him to), he had to be sedated for it. This meant he could have no food or drink that morning and we heard more than a few times, "I'm hungry!" Based on what they saw in the ultrasound, they would then decide if he needed an MRI, too. Luckily, they decided the MRI wasn't necessary.
2 monitor and a padded block to prevent him from bending his wrist and screwing up his iv. He asked for an orange and then a purple Popsicle, so he tried every color. He was woozy for a little while, and couldn't walk unassisted, but after about 2 hours he seemed to be back to his normal self.
We're so happy to be home for a couple of days, although we've had a lot of laundry, etc. to catch up on. We're driving to Boston tomorrow afternoon and will be staying at the Yawkey Family Inn, which is family housing for hospital patients and only costs $30 a night. It's a 10 minute walk to Children's from the Yawkey. We decided it would be no fun to have to get up ridiculously early on Monday morning and drive 2 hours to Boston with a kid that is fasting and will definitely say he's hungry and wants to eat. We have to be at the hospital at 6:30 am and they will probably do the surgery about an hour or hour and half later. I'm still kind of scared because they will be cutting my baby and messing around with his heart, but the surgeon, Dr. Emani is fantastic and we know that he will take good care of Kiefer.
We learned about Dr. Emani and what to expect and where to stay from, Erika, a woman in Western Mass whose daughter had the same surgery as Kiefer. It is a strange coincidence how we got in touch. One of my friends has a blog about children's products and I check it weekly to see what she's reviewing and enter some cool giveaways. One of the items she recently reviewed are tutu shirts for little girls. Since we know we're having a girl, I've been checking out girl clothes... it's a whole new world for me. These tutus are very sweet and $10 from every tutu is donated to Children's Hospital Boston. I checked out her site, Tutu Pour Mon Deux, and that's when I learned that Erika's daughter, Maeley, had had an aortic coarctation just like Kiefer and was operated on by the same surgeon. I sent an e-mail and quickly got a response from Erika, and she has helped us feel more at ease before heading to Children's. Children's has been great to us and it is amazing how they take care of children from all over the world. If you have a little girl in your life, consider ordering a tutu shirt. It will make the little girl happy and help other children at the same time!
Roel and I would like to say thanks so much to you, our family and friends, for the well wishes and prayers. We feel very lucky for the support and love... it has helped us be strong for Kiefer. We're feeling confident that things will go well on Monday. We shall keep you all posted.
April, Roel & Kiefer